What can I say.. I’m done.
I found out today everything I thought was doing so well is actually getting worse. I actually didn’t know that something like that could happen, but apparently the Lupus is “progressing” in the wrong ways. Which is causing my Stage 3 kidney problem to progress, but I need another biopsy to find out which level it’s at now.
Heart isn’t doing so swell either, nor the liver but that’s not so bad, my enzymes have been too high before..
Oh, and the funny thing is that with such a hefty dose of this medicine I’m on, I’m not supposed to be having seizures AT ALL (at least that’s what my doctor told me). So that’s another specialist I need to visit A.S.A.P.
For now, in one day, I’ve been taken off some meds, lowered on some, raised on a few doses and even started on new ones that may or may not cause hair loss… Again. There’s a 50/50 chance it could help or I could get worse. We’ll see.
In all honesty though, I’m tired of everything going to hell lately. I’m fed up. I’m done.